My Dad is different was penned for World Parkinsons Day in 2022. I attempted to take a look at PD from the outside (for a change) and through the eyes of a child.
My Dad is not like the other Dads
who wait outside my school
All wearing shorts and sunglasses
and trying to look cool
My Dad likes to stay at home
and waits to greet me there
With a smile a hug, and a kiss
from his favourite armchair
Before his shakes got really bad
he used to meet me at the door
But when he gets excited
he shakes even more
He moves oh so slowly
like a tiger on the prowl
It takes ages to get anywhere
as he shuffles with a scowl
We used to play in the garden
doing tumbles and throwing ball
But that was before the Parkinson’s
when he was strong and tall
Now we play board games
like Monopoly and Chess
And watch natural geographic
we like Attenborough the best
Mummy says that Dad’s not well
and that’s why he doesn’t work
He used to be a fireman
but had to give it up
He has a room he calls his ‘man cave’
where he sketches, draws and paints
The most beautiful pictures
of birds, animals, and plants
He has a massive box of tablets
that he calls his magic beans
All shapes, size, and colours
the likes you’ve never seen
He gets tired really easy
and falls asleep all the time
Granny says he could easily sleep
hanging on her washing line
You know he’s in the kitchen
when there’s a crash and bang of plates
There’s juice spilled on the worktops
and stuff all over the place!
We go on day trips to the hospital
and always go by train
The doctors and nurses smile
and know us by our names
Some people think he’s drunk
as he staggers round the town
My daddy’s not a drinker
but he still keeps falling down
He helps me with my homework
and is really good at maths
But sometimes gets forgetful
and can’t remember where he was
He reads a bedtime story
and we both laugh out loud
As the words they come out back to front
the odd sentence the wrong way round
Early in the morning my mum
helps my dad get dressed
Putting on his socks
and pulling on his vest
Doing up his buttons
and putting on his braces
I help him with his trainers
he thought me how to tie the laces
Sometimes when he’s really bad
Mum has to cut his food.
And instead of using a knife and fork
he eats it with a spoon
We go swimming Saturday mornings
at the local leisure centre
Once my dad is in the water
there’s few that can swim better
He says he’s always happy
but sometimes I know he’s sad
I heard him crying in the bathroom
one day when mum got mad
Sure, my dad is different
and people often stare
But to me he’s still my Daddy
who loves, laughs and cares
wonderfully expressed Dawson. I wrote a poem called Grandmas cardigan, based on my 5yr old granddaughters view, i'll have to find it.
Great, honest poem about how things change with PD.
Fabulously honest a brave account of life with Parkinson's whilst raising a family, great writing. Thank you
“He moves oh so slowly
like a tiger on the prowl “. A very strong image.
What an interesting exercise. Children often report observation with clarity and untainted by judgement. What I like most is it shows a Dad still engaged despite changed circumstances