I am deformed, degraded,
So desperate, full of dread.
The person I once was has been destroyed!
I am only the remains of a life that once
Was full of vitality, expectancy and hope.
I am reduced to nothing,
I have no sense of worth.
My body is merely a vehicle for my mind,
Its range of competences, once intact,
Is now defunct, its abilities come and go.
My presence is a sham,
Displaying one who is capable,
Confident enough to face the world.
Yet, who do I deceive? I am two people,
Living in a frightening, programmed world.
I rise each day, determined to get through.
Yet as the day presents itself, I sink.
I force myself through life
As through a deep and pressing sea,
Coaxing my body to fulfil its expected role.
My hands won’t move, my lips won’t talk,
My tongue is a folded cloth.
My face a mask, moving in starts,
Unfriendly, resembling metal, stiff and hard
Causing social interaction to be strained.
Val Bowden written in 2000
Life can be tough with PD but still we "rise each day" and go again 🔆